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NORD Announces 2012 Partners in Progress Celebration Honorees

NORD honored members of the Congress, patient advocates, researchers, and companies that have brought new therapies to market on May 15. Read More >

60 Minutes Features Rare Diseases

The show profiled Dr. William Gahl at NIH’s Undiagnosed Disease Program and a variety of patients and cases he has worked on. View the episode >

NORD Announces RFPs for 2012

NORD is funding research seed grant opportunities through its international clinical research program. View the RFPs >

NORD Calls Bill Most Important Since Orphan Drug Act

NORD applauds Senate legislation and says it contains the most comprehensive improvements to policy for rare disease therapies since the Orphan Drug Act of 1983. Read More >

Shire Announces Opportunity to Nominate Individuals for the BRAVE Awards

The program is an initiative to acknowledge ordinary people who give of themselves by caring for others in a meaningful, dedicated and selfless manner, recipients receive $10,000. Learn More >

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The Mobility Project recently published an article about understanding and coping with the challenges of rare diseases. Read the article >

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This website and blog promote public access to publications of government-funded research, this post provides perspective about why access to scientific literature is important. Learn More >

Australia Making Progress in Rare Disease Advocacy

Rare disease advocates in Australia are making progress in their push for a national plan for rare diseases and a national umbrella organization to support rare disease patients.  Learn more >

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One of NORD's Member Organizations, the Vasculitis Foundation, recently created a new awareness video. View the Video >

Apply for a $25,000 Philanthropy Grant

DIA is accepting applications that increase the knowledge related to patient-centered health care; developing patient groups; and improving health care alliances. Learn More >

Report on Risk Tolerance Initiative

Read a summary of the 1st FDA Patient Network Meeting which was designed to initiate a discussion of benefit-risk decision-making with the patient community. Read more >

Petition to expand NIH Public Access Policy across all US Federal Science Agencies

NORD is supporting a petition encouraging the Obama Administration to require free access over the Internet to scientific journal articles arising from taxpayer-funded research. Read more >

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The ACMG has issued a statement that outlines recommended principles to guide clinicians in the clinical application of genome sequencing. Read the statement >

New Free NORD Resource for Medical Professionals

NORD has launched a new online tool to provide a resource for clinicians about specific rare disorders to facilitate the timely diagnosis and treatment of their patients Read More >

Forum on Orphan Drugs Planned for 2012 Bio International Convention

NORD and Centric Health Resources will host a two-day forum in conjunction with the BIO Convention on June 19-20 to discuss innovations and regulations pertaining to rare diseases. Read more >

NIH Launches Collaborative Effort with Industry and Researchers to Speed Drug Development

NIH has announced a program that will match researchers with compounds developed by pharmaceutical companies to help scientists explore new treatments for patients. More >

DIA Global Forum Rare Disease Section

Several articles in the February 2012 issue of the journal, Global Forum, published by the Drug Information Association, focused on rare diseases.  Read the section >

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NORD's Corporate Council meeting was held on May 15th in Washington, DC. Learn more about the Corporate Council meeting >